Batten Disease Family Association
BDFA
About Batten Disease Family Association
We provide 1:1 Peer Befriending support for parents whose children have Batten Disease. We also provide regular group support in the form of an online Mum’s Chat and a Dad’s Chat, led by our trained Peer Befrienders.
PO Box 379, PO Box 379, Shipley, Choose County, BD18 9GE
Service Eligibility
To be supported by one of our BDFA Peer Befrienders you will need to be registered with the BDFA, by speaking to our Family Support team.
Information for Volunteers
We train up our Peer Befrienders from within our BDFA Batten community and supervise and support them as they befriend fellow parents.
Age Groups
Adults (25-65)Themes
Special Health Condition, Disability, Children and Young PeopleRegions
Country: National
Other Information
Type of Befriending: Distance befriending including telephone, video call, letter writing or other means
Who can refer: Self Referrals Accepted, Professional Referrals Accepted